A friend of mine recently wrote this poem about his family …
Col’s daughter has Down Syndrome and this is a very honest and touching poem that he recently wrote over on the families blog – Perfect By Designx2
I don’t want to change her, but…
This is not the way I’d thought I’d start
To share this message from my heart
A question asked from my little buddy
That left Dad feeling somewhat cruddy!
The little voice asked as we left home
“Does anyone wish Eden didn’t have Down syndrome?”
Mum jumped straight in, with no way, no how
while my heart dropped low and my head took a bow
Now before you go “well that’s just not right!”
And before you try to pick a fight
I love Eden Rose more than anyone
And I hope you understand this when I’m done
My little girl had all of my heart
From the get go, right from the start
She had me wrapped ’round her little finger
That’s why the pain of this question will linger
There is nothing to change, not one little thing
She’s my angel, my dream, she makes my heart sing
She’s funny, loving, determined and sneaky
She’s strong, fierce and a whole heap of cheeky
Her love is bold, pure and true
Accepting of others, yes even you!
This world unfortunately won’t always see this
And she’ll bare the brunt of those who “take the piss”
The thought of this cuts deep for me
The Fathers heart wants to protect you see
I would give all I have and then some
To save her from other peoples dumb
Saving from all that hurts or scars
And to set her high among the stars
A love so deep, it wants to shield her pain
To keep her away from others stain
I don’t feel this way from a diagnosis
It’s this broken world that brings my prognosis
The fear of ‘different’ that eats away
It stops us from just saying G’day
There is nothing here that you can catch
But a beautiful relationship just might hatch
If you stop for a moment and truly see,
It’s not the “dis” but the ability
My angel was sent to me from above,
To show us what it means to love
So after all this, it’s not her, it’s us
WE need to change our prejudice.
Written by Col at Perfect By Designx2 – https://perfectbydesignx2.com
